Boy's Body Turning to Bone

**patrina** · 27-12-2006, 08:03 AM

A poor 6-year-old Hayden Pheif suffers from a disease caused by a renegade bone making mutation called Fibrodysplasia Ossificans Progressiva, or FOP, that is known to affect only 500 children in the world. FOP causes bone to grow where it shouldn't, and will eventually imprison him in a paralyzing second skeleton.

Like so many other 6-year-olds, Hayden Pheif likes to play ball with his family. But this simple task proves difficult for little Hayden. Due to one of nature's most rare and catastrophic diseases, he can't raise his arm to throw the ball, or even bend over to pick it up.

Until now, Hayden's life expectancy was only 45 years. But with the discovery of FOP gene - a monumental breakthrough that could lead to a cure, lies new hope.

Sheng4Eva · 27-12-2006, 08:10 AM

hmmm ... tts really very sad ...
but dont really understand the sickness

**patrina** · 27-12-2006, 08:49 AM

FOP causes bone to grow where it shouldn't.

Sheng4Eva · 27-12-2006, 08:51 AM

hmmm ... tt means in the body got extra bones around ?

27-12-2006, 08:03 AM	#1 (permalink)
patrina Happy Girlie Join Date: Oct 2006 Posts: 1,613 iTrader: (13) My Mood: Gender: Zodiac Sign: Country: Location: Hougang SGC$: 813.78 Bank: 0.00 Total SGC$: 813.78	Boy's Body Turning to Bone A poor 6-year-old Hayden Pheif suffers from a disease caused by a renegade bone making mutation called Fibrodysplasia Ossificans Progressiva, or FOP, that is known to affect only 500 children in the world. FOP causes bone to grow where it shouldn't, and will eventually imprison him in a paralyzing second skeleton. Like so many other 6-year-olds, Hayden Pheif likes to play ball with his family. But this simple task proves difficult for little Hayden. Due to one of nature's most rare and catastrophic diseases, he can't raise his arm to throw the ball, or even bend over to pick it up. Until now, Hayden's life expectancy was only 45 years. But with the discovery of FOP gene - a monumental breakthrough that could lead to a cure, lies new hope.

27-12-2006, 08:10 AM	#2 (permalink)
Sheng4Eva Experienced SGClubber Join Date: Oct 2006 Posts: 6,198 iTrader: (0) Gender: Zodiac Sign: Country: Location: Yishun SGC$: 1,404.42 Bank: 0.00 Total SGC$: 1,404.42	hmmm ... tts really very sad ... but dont really understand the sickness To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. FTW

27-12-2006, 08:51 AM	#4 (permalink)
Sheng4Eva Experienced SGClubber Join Date: Oct 2006 Posts: 6,198 iTrader: (0) Gender: Zodiac Sign: Country: Location: Yishun SGC$: 1,404.42 Bank: 0.00 Total SGC$: 1,404.42	hmmm ... tt means in the body got extra bones around ? To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. FTW

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27-12-2006, 08:49 AM	#3 (permalink)
patrina Happy Girlie Join Date: Oct 2006 Posts: 1,613 iTrader: (13) My Mood: Gender: Zodiac Sign: Country: Location: Hougang SGC$: 813.78 Bank: 0.00 Total SGC$: 813.78	FOP causes bone to grow where it shouldn't.

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